I was complaining about my medical staff in an earlier chapter but that is a marginal aspect. My CKD nurse is great and always has my best interests in mind. I suppose that is her job, and she took an oath as a healthcare provider that might be obligatory as well as moral and idealistic, but she really cares.
When I first visited her, it was a letdown in that she told some sad stories about CKD patients, and showed me a somber video, thus my comments in the previous chapter, but again, I think CKD is a crushing diagnosis.
For me, while I can be profoundly negative in doubting certain things, I am also very cheerful and optimistic about most things, and am easily entertained and pleased in many respects. When I heard I had CKD, it was hard. But you can live a fairly normal life in the earlier stages of CKD. However if you are on dialysis, or maybe if you have complications I haven’t had such as rejection of a transplanted kidney, then I suppose things aren’t as golden.
I work from home, so the fatigue aspect is fairly minor, but as I noted previously, I do have to watch myself with prolonged physical activity.
My nurse meets with me online every few months, tracks my symptoms and other elements, encourages me, confirms my choices around dialysis, if it comes to that, and keeps me posted on my best options and upcoming items I need to know about. We have a good professional relationship and I am blessed to have such a kind assistant helper.
ꭥ
“Surely God is my help; the Lord is the one who sustains me.”
— Psalm 54:4
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